Finding Hope in the Rare: Jane’s Story and the Fight for Mowat-Wilson Syndrome Research

In this episode of Sounds of Science, Lauren and Matt Noonan share their powerful journey following their daughter Jane’s diagnosis with Mowat-Wilson Syndrome. From unexpected medical challenges to finding community and launching their own nonprofit, the OURS Foundation, they discuss how advocacy, collaboration, and emerging research are shaping new hope for families living with rare diseases. 

• Charles River | ASO Development 
• Charles River | ASO Screening Services 
• Charles River | Rare Disease 
• Charles River | Rare Disease Research for Drug Development 
• Mowat Wilson Foundation

What is Sounds of Science?

Sounds of Science is a monthly podcast about beginnings: how a molecule becomes a drug, how a rodent elucidates a disease pathway, how a horseshoe crab morphs into an infection fighter. The podcast is produced by Eureka, the scientific blog of Charles River, a contract research organization for drug discovery and development. Tune in and begin the journey.